SCHAF began as a response to something we kept seeing in our communities: pain that came from not knowing. Today, we are the bridge between knowledge and the lives it can change.
To improve the lives of individuals affected by sickle cell disease through education, early detection, and access to support systems.
A society where every individual is informed, supported, and empowered to prevent and live well with sickle cell disease.
We move people through a clear arc — from awareness, to screening, to care, to belonging — so progress is never accidental.
A dedicated team of professionals, healthcare advisors, and community champions.
We didn’t arrive here in one leap. Every chapter of SCHAF was built on what the previous one taught us.
It started with a small group coming together around a growing concern the lack of awareness about genotype compatibility and its long-term consequences. What began as simple conversations quickly revealed how little people understood and how much needed to be done.
Before expanding, time was spent refining the approach how to communicate clearly, how to guide conversations, and how to make screening accessible. Each interaction shaped a more effective way of reaching people and helping them make informed decisions.
Once the model worked, we took it to the places people already gathered — secondary schools, churches and mosques, marketplaces, and clinics. Awareness became a conversation people had with each other, not just with us.
As outreach grew, so did the need for care. More individuals were identified as already living with sickle cell, many without consistent support. This led to the development of structured patient support, including access to medication, guidance for families, and ongoing care systems.
Today, the work has grown into a more coordinated system addressing prevention, detection, care, and social support across multiple communities. Over the years, what started as a response to a problem has become a sustained effort to address it at scale
The Sickle Cell Hope Alive Foundation (SCHAF) is a non-profit organization dedicated to improving the lives of individuals and families affected by Sickle Cell Disease through awareness, advocacy, screening, and sustained support.
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